Banner
    Through A Glass Darkly: PBS's Autism Now And Simon Baron-Cohen's The Science Of Evil
    By Kim Wombles | April 17th 2011 08:30 AM | 8 comments | Print | E-mail | Track Comments
    About Kim

    Instructor of English and psychology and mother to three on the autism spectrum.

    Writer of the site countering.us (where most of these

    ...

    View Kim's Profile
    For now we see through a glass darkly, but then face to face; now I know in part, but then shall I know even as also I am known. 

    It is, without a doubt, a truism, that we see the world through our own eyes, and that we cannot but help doing so. We try to put ourselves in other's shoes, but it is ourselves we put into those shoes, imagining it from our own perspective. We can't help it. And this is not a failure of autism, but of human nature in general.


    Everything we take in is filtered through our life experiences, our preconceptions, our expectations, and it means that we often make mistakes. Confirmation and disconfirmation biases, availability heuristics, and a whole host of biases and heuristics make sure we see but through a glass darkly while thinking we have the right of it.



    It's natural then that people in the autism community are filtering two new works through their own particular worldviews: PBS's Autism Now series (part one is available above) and Simon Baron-Cohen's soon-to-be-released The Science of Evil: On Empathy and the Origins of Cruelty.

    Watch the full episode. See more PBS NewsHour.






    Robert MacNeil is hosting a series of six reports on autism on the PBS Newshour; autistic self-advocates are protesting the lack of interviews of autistic individuals, with several autistic bloggers writing about the series. Lisa Jo Rudy has a lively (as usual) discussion going on over at About.com concerning the first part in the series.






    The first part covers Robert's grandson and how autism has impacted the family. Robert's daughter blames  three vaccine shots at fifteen months for her son's autism, seizures, and gastrointestinal issues. What is perhaps most interesting is MacNeil's assertion that "Now, more doctors say it often involves serious physical illness." Dr. Timothy Buie's presence in the segment seems to give credence to this assertion, but it's not one Buie's actually made. It's apparent that Nick, MacNeil's grandson, has more than just autism going on. What follows is MacNeil's question to Buie and Buie's answer:
    ROBERT MACNEIL: Dr. Buie found changes in the lower GI tract he called lymphoid-nodular hyperplasia -- inflammation and damage in his small intestine.How does that affect the life of a child like Nick? For instance, does it give him pain?
    DR. TIMOTHY BUIE: I think it can give pain. And I think pain in a child with autism is a very difficult thing to assess because a child with autism can't vocalize that. He will very often not come to you and say, "I've got a bellyache." He can't use those words. So he may exhibit that as a child who doesn't sleep well. He may exhibit that as a child who has a lot of increased agitation or hyperstimulatory-type behaviors.And part of the problem with that is that we've accepted that those are behaviors that we often see in children with autism, and we've written it off to their autism. So it's very difficult to think through whether that's a marker for pain in some of those kids if we're unwilling to look for other reasons.
    While there are limitations in what can be said in a fifteen minute segment, MacNeil puts out an unsubstantiated claim that many doctors believe autism to be a "serious physical illness" without providing evidence, and without acknowledging that this is not the mainstream scientific consensus about autism. In other words, he provides a segment based not on what is known about autism as a whole, but on a subset of children with autism and other issues (it appears the grandson also has a mitochondrial disorder: "Nick has serious physical illness: in his digestive system, his mitochondria, the energy needed by his cells for normal activity, plus frequent small brain seizures, and extreme sensitivity to light and sound").





    Will the remaining five segments widen this perspective? We'll have to wait and see.

    The Science of Evil

    Onto another area where people see through the glass darkly. Simon Baron-Cohen is a controversial figure in the autism community due to his theories about what is behind autism and that there is a failure of theory of mind in autistic children (and a failure of empathy). He has a new book coming out in the US in May, The Science of Evil: On Empathy and the Origins of Cruelty, which is already available in the UK under the title Zero Degrees of Empathy: A new theory of human cruelty (disclosure: I have a review copy of the US title). 






    On Friday, Baron-Cohen wrote about his new book and his theory of empathy erosion in the Financial Times. A reviewer there used Baron-Cohen's work as a launching point to discuss his own beliefs regarding evil, charging that Baron-Cohen's work reveals "a certain philosophical naivety." And perhaps it does, but that misses the point, as did the reviewer on Baron-Cohen's definition of empathy.




    Baron-Cohen isn't interested in metaphysics and when reviewers (or readers) place their definitions over Baron-Cohen's, they're not critiquing his work based on his definitions. In his new book, Baron-Cohen defines empathy in two parts: "Empathy is our ability to identify what someone else is thinking or feeling and to respond to those thoughts and feelings with an appropriate emotion."





    The reality is we all have failures of empathy; we may indeed recognize what another person is feeling (but that alone is not empathy); we must care about it enough to respond appropriately. It is this second component which is vitally important, and to leave it out, when it is a fundamental part of what Baron-Cohen is talking about is to argue a strawman, whether intentional or not.






    And, I think, it reveals, a critical issue at stake when we're discussing things in the autism community (and the wider world): we often do not take the time to check our biases at the door. We often can't, and so we read blog posts, comments, articles, emails, etc., through our own unique lenses. We see what we expect to see and we use our own definitions, and it means that our communications are a series of miscommunications more often than not.






    We need not just to teach this two step component of empathy (and the third, unstated component, appropriate action, which appears to be subsumed under appropriate emotion) as Baron-Cohen argues we should: 
    "Empathy can even be taught through learning how to compromise, or learning how to put your point of view across more diplomatically, thereby thinking about how your words are received by the listener. There is a wide variety of ways to teach this, and schools need to make as much space in the curriculum for emotional literacy as they do for other kinds of literacy. And because of the empathy spectrum, such teaching materials are likely to benefit not just the kids who are at the extreme of zero degrees, but also many throughout the broader population."
    We also need to be deliberate and careful when we respond to other's work that we are taking it in and using the same definitions when we argue against their positions. We should remember we all see through a glass darkly.






























































































































































































































































































    Comments

    Brilliant as usual! I wonder if PBS received any support from our favorite Autism-for-profit group.

    I do have one comment regarding this quote.
    "we may indeed recognize what another person is feeling (but that alone is not empathy); we must care about it enough to respond appropriately. "
    I'd add that it's not only "caring enough" its being able to process which emotional response is appropriate in the first place.

    May I suggest a further resources to learn more about empathy and compassion.
    The Center for Building a Culture of Empathy
    The Culture of Empathy website is the largest internet portal for resources and information about the values of empathy and compassion. It contains articles, conferences, definitions, experts, history, interviews,  videos, science and much more about empathy and compassion.
    http://CultureOfEmpathy.com

    Also, we invite you to post a link to your article about empathy to our Empathy Center Facebook page.
    http://Facebook.com/EmpathyCenter

    Let's Find 1 Million People Who Want to Build a Culture of Empathy and Compassion
    http://Causes.com/Empathy

    Warmly,
    Edwin

    Fred Phillips
    I hope Baron-Cohen goes into detail about what he means by "appropriately." If not, the definition is empty or perhaps tautological.
    kwombles
    I'll make sure to address whether he does or not once I've finished the entire book and write the review up. It's a very good point.
    “Nothing in the world is more dangerous than a sincere ignorance and conscientious stupidity.” --MLK, Jr.
    keesp
    I would certainly include primatologist Frans de Waal's discussion on the evolutionary origins of empathy, which he derives from his observations in (other) primates. His example of a bonobo who carries an injured bird to a high branch, so that it can fly away demonstrates the ability not only to understand another being's predicament, but also its ability to understand that the bird has other needs than a bonobo...consider that with the host of dog-owners who treat their dog as if human....
    Keesp
    Dogs enjoy being treated as humans! It does wonders for their self-confidence. (Of course, it can be carried too far.) But they sure enjoy being talked to in normal human speech, even if they don't understand the words.

    Gerhard Adam
    ...even if they don't understand the words.
    Like half the humans I run into.
    It is certainly true that nobody can put himself into another person's shoes. The autistic person is almost always an enigma to those trying to assess him or her. It might be valuable to have an autistic person comment on the PBS program. We'll see what comes up. To argue before all the segments have been shown is a bit premature, though. In the end, the people nearest to the autistic person may be better at seeing the person beneath the autistic shell than any doctor. As to the ability to be empathetic, that may very well not have anything at all to do with whether the person has empathy rather than whether the person is able to outwardly express anything, since expression is often severely lacking in autistic persons. So, the last word has not been spoken. Anyone making statements, even trained academics, on the subject of autism is at least several steps behind anyone who has actually experienced it.