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Holly Usrey-Roos
About Holly I am the mom of 2 children with Fragile X Syndrome who has spent the last several years bringing families together, understanding and education to communities, providing awareness and doing advocacy work for those living with Fragile X Disorders. I am very involved in our research community and speak nationally about Fragile X Disorders and fund raise to help support research, families, education and hopefully one day... a cure.
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