LONDON, December 8 /PRNewswire/ -- Epileptic seizures, facial rash, learning difficulties, kidney problems? If one or more of these ring a bell then you or someone in your family may have the genetic condition Tuberous Sclerosis Complex, also known as TSC. You may already have been given this diagnosis but have not yet taken the step of contacting The Tuberous Sclerosis Association.
Over 30 years we have invested millions of pounds into medical research which has already made significant changes to how people can be diagnosed and treated for TSC and even helped towards discovering the first ever possible treatment for TSC.
We already provide a lifeline of support to over 1,600 families affected by TSC but we know that there are many more who are not in touch with us.
The families we already help tell us they get tremendous comfort and support from being able to pick up the phone to one of our specialist advisors, get answers to their questions from our website and publications or simply meet other people who share the same experiences through our website forum, events and regional support groups.
Many have told us that contacting The Tuberous Sclerosis Association has been the lifeline they desperately needed during difficult times and often a positive turning point - such as the visit of our Specialist Advisor to talk to their child's school or doctor.
We are passionate that as many people who can benefit from our work, do so.
The Tuberous Sclerosis Association is the UK charity that supports sufferers, promotes awareness, and seeks the causes and best possible management of Tuberous Sclerosis (TSC).
Often babies with TSC appear perfect at birth and develop just like other children for months, even years. That first seizure, brain tumour or other sign that something is wrong comes as a tremendous shock. When you're told its TSC, you'll hear how tumours can grow anywhere in your child's body, causing problems like epilepsy, learning difficulties, autism, challenging behaviour and disability. TSC can affect anyone, there is no cure and no way of knowing how badly you or your child will be affected.
If we can help you or you can help us by fundraising for people with TSC then we'd love to hear from you - please contact Anne Carter on: +44(0)115-923-4301 / Email: email@example.com
Please contact Anne Carter on: +44(0)115-923-4301 / Email: firstname.lastname@example.org